Introduktion till sjukdomens komplexitet och viktiga vårdfrågor
Webinar på engelska: Epidermolysis bullosa, or EB, is the name of a group of rare, inherited skin conditions that result in easy blistering of the skin and mucous membranes. It poses treatment and care challenges, but is it possible to simplify patient care for this complex condition?
Tuesdag 17 augusti kl. 18:00
This August 17th live webinar discusses what EB is, its complexities and different types of EB. The webinar also covers three EB patient care aspects:
- Wound management
- Pain management
- Nutrition
Presenter Dr Sophie Kitzmüller, head of the EB Academy in Austria, will also answer questions in a live post-webinar Q&A session.
Dr Sophie Kitzmüller PhD
As the Head of the EB Academy and EB-Clinet in Salzburg for the last 2 years, Dr Kitzmüller holds a PhD in Natural Sciences and a Masters in Genetics and Biotechnology, and now specialises in educating patients, their families and healthcare professionals in patient care. She has presented at international DEBRA conferences and has also published several peer-review papers on new treatments for EB.
Tisdag 17 augusti ki 18:00
